Marianne Has ALS

ALSaversarie

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mropoulos08

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It’s been a year since I was diagnosed, In that time I have learned the following:

I don’t want to die, but I’m not as afraid of dying as I used to be.

I am loved.

I am loved for who I am, not what I can do.

Choosing to live in spite of ALS is harder than just surviving with ALS.

Despite all the loss I still have so much more so lose, and that’s scary.

It’s hard, and sometimes you need help, but life is all about choices. I choose to remain hopeful for a future. I choose to embrace my disability. I choose to be happy and grateful for the life have.

3 responses to “ALSaversarie”

  1. finneuphoria Avatar
    finneuphoria

    What a beautiful statement on living in the face of incredible obstacles. I am so grateful to call you my friend and family. All my love

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  2. Jacob Avatar
    Jacob

    I will love you always, Marianne

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  3. CourtneyMarden Avatar
    CourtneyMarden

    Marianne, thanks for sharing your thoughts and wisdom during this vulnerable time! You are brave and kind and we all love you! -Courtney

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Hello,

I’m Marianne

Welcome to my ALS story. The corner of the internet devoted to the good, the bad, and the ugly of living with ALS. Here, I invite you to join me on a journey of love, hope, and sadness as I navigate this final phase of my life,

Let’s connect

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