Marianne Has ALS

Good News!

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mropoulos08

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Today I got the best news…my ALS is sporadic, not genetic! Having sporadic ALS means I don’t have to worry about my son, brother, or mom getting this disease (the likelihood of any of my realitives getting ALS is 1 – 3%).

March 7:

I know having the genetic form of ALS would not have made me responsible for others in my family having the diseaase…but it kind of felt that way. I feel like a huge weight has been lifted from my shoulders. I don’t think I’ve been this happy since 2/2.

March 6:

More good news! Behold the before and after:

2 responses to “Good News!”

  1. finneuphoria Avatar
    finneuphoria

    congratulations on the good news and the decluttering !

    ps if anyone is local and would like to bring them a meal, you can find the info and schedule here: https://takethemameal.com/ZDPI2765

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  2. Rossanne Walden Avatar
    Rossanne Walden

    You guys must have worked your butts off.ā€ƒI told you that Iā€™m used to messy I could have been ok with it. šŸ˜Š

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Hello,

I’m Marianne

Welcome to my ALS story. The corner of the internet devoted to the good, the bad, and the ugly of living with ALS. Here, I invite you to join me on a journey of love, hope, and sadness as I navigate this final phase of my life,

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