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Continue reading →: als #2
i am not ready to become your goddess- sitting silent on my throne- your offerings: the gifts of of life. i am not ready to fade- to become a myth forgotten…
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Continue reading →: Loss
I choked again last night. I wish I could say that this is a once a month occurrence, but what was once uncommon is now a weekly event. I choked on water. Suddenly taking a drink can kill me. I knew this would happen, I had expected something along the…
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Continue reading →: Updates / June Clinic
Hello! It’s been a bit, let’s jump right in! The end of April was like a breath of fresh air. My aunt and cousin came out to visit – they helped out around the house (which was amazing), but the true highlight was just hanging out with people who love…
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Continue reading →: Practicing Hope
Today was hard. Physically I’ve come to terms with where I am, however, I’m not prepared for the loss that is to come: unable to hold my husband’s hand, hug my son, pet the dogs, and unable to communicate with my own voice. I don’t know how to grow or…
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Continue reading →: Blessings: The Kindness Of Strangers
Quick disclaimer: My life is overflowing with blessings. I am so thankful for the friends, family, and strangers who are in my life and who bless me with their kindness. God is good. ALS is a progressive and debilitating disease that continually shrinks the world around you. A year ago…
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Continue reading →: What does ALS feel like?
Note: This post is inspired by (and in part draws from) the book ALS Saved My Life Until It Didn’t by Dr. Jenni Kleinman Berebitsky People are very curious to know how my ALS started and how it’s currently going. I don’t mind these conversations – it’s always a benefit…
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Continue reading →: Falling
Today I fell inside the house. I always thought it would be the dogs who take me out, turns out it was my 11 year old I need to worry about. He had left his scooter by the front door in an upright position, however, through mysterious forces (like gravity)…
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Continue reading →: Money!
(Note: This is the first Blog Post that is written by both Jacob and Marianne. I have noted the author at the beginning of each section) Jacob: Is it not enough to have your wife diagnosed with a terminal illness that will completely paralyze her and cut her life short? …
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Continue reading →: Our Journey Begins!
Husband Guest Post #1 My name is Jacob Henderson. I am Marianne’s husband. When we started this ordeal Marianne had a very good idea of starting a blog and posting a picture a day. There are many things that are good and that we SHOULD be doing but we that we are…
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Continue reading →: Where did you go?
March was chugging along and I was feeling great, even optimistic and then….DEPRESSION! GRIEF! ISOLATION! I can’t tell you why one day I was great and the next I was a troll living under the blankets, avoiding people (texts, calls, in person visits).My best guess is that when I was…
Hello,
I’m Marianne
Welcome to my ALS story. The corner of the internet devoted to the good, the bad, and the ugly of living with ALS. Here, I invite you to join me on a journey of love, hope, and sadness as I navigate this final phase of my life,
Marianne Has ALS 