I choked again last night. I wish I could say that this is a once a month occurrence, but what was once uncommon is now a weekly event. I choked on water. Suddenly taking a drink can kill me. I knew this would happen, I had expected something along the lines of gasping and coughing, but that’s not what choking feels like. Choking feels like putting a plastic bag over your head right after you cross the finish line. There is no air to make a gasp, no air to push out a cough.
ALS moves slow enough that you feel you have control, slow enough to make you feel that if things just stayed here it would be okay. For me ALS causes a big loss about every two to two and a half months. The days I notice this loss are the hardest days of the journey. In these moments I am reminded that this journey has an end and I am rushing towards the finish line,
Marianne Has ALS 
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