Weekend Update

First, sorry for the delay in photos. Also sorry if I ignore your texts. It’s not that I don’t want to be social, if anything I think being social right now is really important…I’m just tired or sad or overwhelmed or perfectly content and I forgot you texted me 3 hours ago.

March 9: We had some cake and then kicked butt at an escape room. The day was pretty much perfect.

March 10: This is my support squad board. I put all my cards etc here. It’s a nice visual reminder that I’m not alone.

March 11: I got this from for my electric wheelchair!

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I’m Marianne

Welcome to my ALS story. The corner of the internet devoted to the good, the bad, and the ugly of living with ALS. Here, I invite you to join me on a journey of love, hope, and sadness as I navigate this final phase of my life,

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